Rebecca Callaghan’s pregnancy back in 2012 was a difficult on, and due to excess fluid around the fetus, the doctors decided to induce labor early.
Nobody had a clue that there was something wrong with little Matilda until about half an hour after she was born.
When she came into the world, she had a big blue mark on her face that stretched down one side of the body. At first doctors thought it was just a bruise – then they realized their huge mistake.
Just 30 minutes later, the doctors told the parents that it was a birthmark.Two weeks after the birth, Matilda was diagnosed with Sturge Weber’s syndrome, a very rare neurological skin disease which also causes paralysis, learning difficulties and seizures.Matilda quickly became so ill that she was taken to the Adler Hey Children’s Hospital in Liverpool, England.
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In just a few days, the parents’ happiness had turned into extreme concern. They didn’t know if they would see their daughter alive again.